Edit ModuleShow Tags

Help a family take the next step in halting a monster disease



Photo: To the Edge of the Sky/Kickstarter

 

This Mother’s Day, Seattleites have a unique opportunity to help a local mom, Mindy Leffler, and her family with their long-term struggle to access an effective treatment for Duchenne Muscular Dystrophy (DMD). This incurable and fatal genetic disorder affects roughly 1 in 3,500 boys. Leffler’s eleven year-old son Aidan, a die-hard Sounders fan, has DMD. Without an effective treatment, Aidan could lose his ability to walk in the near future, and over time he will progressively get worse. Most boys with Duchenne typically die by their mid-20's.

The Lefflers have joined forces with three other families from around the country whose children have Duchenne. All are featured in a documentary filmTo the Edge of the Sky, which portrays these families advocating tirelessly for the FDA to provide fast-track approval for certain experimental drugs in clinical trials that they believe may slow or stop the advance of DMD. The film’s producers, Todd and Jedd Wider of Wider Film Projects, who have produced Oscar and Emmy award-winning documentaries, have launched a Kickstarter campaign to raise the necessary funds to finish the film and assist in the outreach campaign for the film.

Help the Lefflers and other families go to the edge of the sky for Aidan by donating to the Kickstarter campaign for To the Edge of the Sky here.  

Edit ModuleShow Tags

Add your comment:
Edit ModuleShow Tags
Edit Module

Family Events Calendar

Edit ModuleShow Tags
Edit ModuleShow Tags
Edit Module Edit ModuleShow Tags Edit ModuleShow Tags
Edit ModuleShow Tags
Edit ModuleShow Tags